Our Story
Born from personal experience, driven by compassion, and inspired by the desire to make a difference.
Where it is today
MG Warrior Gatherings
Regular gatherings for people with MG and their families, on Zoom and in person.
The annual MG Awareness Walk
Held on the last Saturday of June in Halifax. Single Snowflake was the first organisation on the East Coast to hold an MG walk, in 2020.
Pamphlets where they matter
MG information distributed to clinics and specialists' offices, so a patient and their doctor can both find out what MG is, and that there is somewhere local to turn.
Presentations and education
Talks for businesses, schools and communities, in person or online.
The Mighty Giant
A stage awareness play created by Nadine, using live performance to teach communities about invisible illness, because some things land harder when you watch them happen.
Questions we're asked a lot
Are you a research foundation?
No, and we're careful about the difference. Single Snowflake is an advocacy association. We raise awareness, we educate, and we bring people together. We do not fund medical research or pay for anyone's treatment.
We admire the Myasthenia Gravis Foundation of America enormously, and we hope Canada one day has something like it.
I'm not in Halifax. Is this for me?
Yes. We are Halifax, Nova Scotia rooted, and we welcome MG Warriors across Canada. That is exactly how our founder puts it.
Halifax is where the walk happens, where the proclamation came from, and where our pamphlets sit in clinic waiting rooms. But Gatherings run on Zoom precisely because MG makes travel hard, and there is no province on the sign-up form.
Who runs Single Snowflake?
Nadine (Nay) Parsons founded it and leads it as an unpaid volunteer, alongside a board and a small group of volunteers.
The organisation has been kept going largely out of her own pocket.
How can I help?
Come to the walk, or volunteer at it. Invite us to present to your workplace, school or community group. Share what MG is with someone who has never heard of it.
Donations help too, and there's a page explaining exactly where the money goes, but time and word of mouth are worth just as much to an organisation this size.
There's a person at the other end
Not a call centre and not a chatbot. Nadine and a small team of volunteers who live with MG themselves. Ask us anything, or just say hello.


