Single Snowflake

Halifax, Nova Scotia

Shining a Light on Myasthenia Gravis, So No One Feels Unseen, Unheard, or Less Alone.

At Single Snowflake Myasthenia Gravis Advocacy Association, we believe no one living with Myasthenia Gravis should ever feel unseen, unheard, or alone. We're here to raise awareness, share understanding, create connection, and shine a light on life with MG.

Whether you're living with MG, supporting someone you love, or simply wanting to learn more, you are welcome here. There is a place for you at Single Snowflake MGAA.

“One minute we look okay, one minute we don't.”

Nadine (Nay) Parsons — founder, and living with myasthenia gravis for 26 years

Myasthenia gravis is an invisible illness. Looking well and being well are not the same thing, and most people here have spent a long time explaining that to someone. You won't have to explain it here.

Email us — we reply within three business days

What we do

Three things, all of them running now. None of this is a plan for someday.

  • MG Warrior Gatherings

    People with MG and their families, together — on Zoom and in person. Conversation, guest speakers, and the relief of talking to someone who already understands.

    Read moreabout MG Warrior Gatherings
  • The Annual MG Awareness Walk

    The last Saturday of June in Halifax. The first MG walk on the East Coast, and the fifth was held in June 2026.

    Read moreabout The Annual MG Awareness Walk
  • Advocacy & education

    Pamphlets in clinics and specialists' offices, presentations for schools and workplaces, and a stage play — so that MG is recognised before someone spends years being told nothing is wrong.

    Read moreabout Advocacy & education

Milestones

What a small organisation has already changed

Single Snowflake was started by one person with myasthenia gravis, out of her own pocket. This is what has come of it so far.

  • June is MG Awareness Month in Halifax

    Single Snowflake advocated for and helped bring about the municipal proclamation of June as Myasthenia Gravis Awareness Month in Halifax, Nova Scotia. Nadine calls it a milestone we are proud of.

  • The Love Award

    Nadine was honoured with the Love Award through The LOVE Program, in recognition of her dedication to helping others and advocating for her community.

  • Partnered with the MGFA

    Single Snowflake has partnered with the Myasthenia Gravis Foundation of America, and Nadine has been interviewed by the MGFA so that patient voices are part of healthcare conversations.

Where to start

However you got here, there's a way in

Just diagnosed?

You do not need to understand all of this today. Start with what MG actually is, in plain language, and what tends to help in the first few weeks. Then come and meet people who have been where you are.

Never heard of MG?

Most people haven't, and that is most of the problem. Ten minutes here and you will understand what myasthenia gravis is, why it is so often missed, and what the people living with it wish you knew.

Stay in touch

Walk news and organisation updates land here and on our social media. Gathering dates go straight to the people who've signed up. If it's easier to have it all come to you, leave your email.

Walk dates, Gathering dates, and news from the organisation — now and then, not every week. We don't share your email with anyone, and every message has an unsubscribe link.

There's a person at the other end of this

Not a call centre and not a chatbot — Nadine and a small team of volunteers who live with MG themselves. Ask us anything, or just say hello.